Arnold Kidney Update

Had our regular checkup with Arnold's nephrologist today, on the whole, things are very positive, and look good for now. He's recovered from his recent hospitalization, and bout of Swine Flu well. Everything's about where it should be.

I did learn a couple of things, both about the future and about kidney treatments in general. First of all, the doc reported that his hemoglobin was good. Am pretty sure this is the first time he's bothered to mention that--maybe he's muttered something mostly to himself about it a time or two. He went on to inform me that when his kidney function worsens (about 25% efficiency or so), he'll need a weekly injection to boost that. I'm getting it on the record now that I hereby volunteer TLoML to give that, assuming it's not something a professional has to administer.

His growth rate is slowing, and assuming it continues the way it is, within a year or two we're going to have to talk about growth hormone. Apparently, and this was news to me, it's not that kidney patients don't produce the normal amount of growth hormones themselves. Rather, there's something also produces that blocks the hormone. So, (assuming he gets the hormone) he'll be given a dose equivalent to that given to someone who doesn't produce the hormone on his own, which will be enough to overcome the block. This will come in the form of daily injections. Please see the previous paragraph for my stance on the administration thereof.

His kidney function had been thrown off by the infections/dehydration that were behind his recent hospitalization, but the lab results show that they're back to where they were before. In the past, the doc's been able to do a quick and dirty calculation to estimate kidney function based on those results. But thanks to that pediatric study we've talked about before (here and here, for example), that calculation has been thrown out. The doc was sorta grumbling about that (a diagnostic tool he's used his entire career has been tossed) and sorta informing me about the use of that study. Apparently, they've been able to adapt the calculation to come up with a way to estimate function for girls, but they're still working on it for boys, so his usual rough guess is rougher than normal. We're at 35%-ish. He didn't tell me what the range on that is, but in the past it's been +/- 15%.

The last thing I wanted to mention has nothing to do with Arnold's condition, but when we talked about the hospital stay, I mentioned that the insurance company was hassling us about paying for it. He was incredulous about that and volunteered to help with the appeal. Then he said something about at least when dealing with an insurance company there's a person you can talk to and "if it gets to the point it's the government deciding these things, it'll be a wall." I see him briefly catch himself before finishing his thought after saying the word "government", but then he must've decided he didn't care about opening a potential can of worms and spoke his mind. I know there are exceptions, but I've yet to find a medical professional in favor of the legislation before Congress.